Fighting against a Chronic disease- why is healthcare so unfair?

(73)inGEMS

You know that feeling when you wake up and you already know something is wrong? You feel like crap, maybe coughing, maybe fever, maybe just heavy and sick. So you call work, take a sick day, and you stay in bed with tea, tissues, some medicine. You rest, you sweat, you wait. After a week you’re better, and life goes back to normal.

But what happens when it doesn’t?

What happens when your body doesn’t get better? 🤔When it feels like your body is shutting down, but you don’t even know why? You go to the doctor, they run some tests, and still nothing. So you do more tests. CT, MRI, blood, whatever. Weeks pass, sometimes months, and still no clear answers. You’re tired, scared, waiting.

And then suddenly…boom…you get the news: you have a chronic illness.

And that word… chronic. It means it’s not leaving. It means this is forever.

At first, you think: okay, I will fight it. First year, maybe two years, you start researching, testing medications, trying to find the one that helps you. Some drugs work a bit, some not at all. Side effects hit. You keep adjusting, keep trying, keep hoping.

And honestly…it’s only possible for me because I live in a country where I have health insurance. That’s the only reason I can afford all these tests and all these medications. I don’t pay thousands out of pocket. In Austria, my medicine costs me like 7 dollars ( yes, prescription). In the USA, the same thing costs around 7,000 dollars. Yes, seven thousand.

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How the hell can people afford that?! 😒

I have talked to people from different countries in my support group, and so many of them cannot afford the proper medication. They try the cheaper ones, but those don’t help enough. They stay sick because they don’t have the money to even test other options. I myself tried so many different treatments, and if I had to pay the real price, it would be more than 20,000 dollars already. Who can pay that? Almost nobody. And yet, somehow, people are forced to make these impossible choices. 😡

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And it’s not just the medicine. What about yearly check-ups? MRI, CT, colonoscopy, blood work. All these things are expensive. I can do them because my healthcare covers it. But what about the people who can’t? They don’t know how their disease is developing because they can’t afford to check. That’s terrifying.

Why is it like this? Why is it so hard for countries to offer free healthcare? Why does it depend on where you are born? Why does someone like me get medicine for 7 dollars (prescription) while someone else pays 7,000 or goes without? Families with two or three people with chronic illnesses? How the hell are they supposed to survive if every pill, every doctor visit, every scan costs a fortune? 😔

And then there’s work. Employers don’t want sick people. If they know you will often be on sick leave, they won’t hire you. They prefer healthy workers. So now you’re sick, jobless, and stuck. If I lose my job, I still have free healthcare. But in other countries? No job…no health insurance…no treatment = no life.

So again I ask…why the hell is free healthcare not available everywhere? Is it politics? Is it money? Do countries actually profit more when people suffer and pay insane amounts for treatment? Or is it just that no one cares enough to change it?

All I know is that I am lucky. But when I read stories in my group about people who cannot afford their medicine, people who just suffer in silence, I feel angry and sad. My heart breaks because it’s so unfair. 😔

People deserve care. Free, equal care. Not only the rich, not only the lucky ones in the “right” country. Everyone.

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So tell me, why is it so hard? Why can’t every country give free healthcare to their people? Whose fault is this? Ours? The government? The system? I really don’t know.

But I know one thing! It shouldn’t be this way.

“Promise me you’ll always remember: you’re braver than you believe, and stronger than you seem, and smarter than you think.” - A.A. Milne

With love, @tinabrezpike ❤️

inGEMSby
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  • worldfinances profile picture(61)

    Healtcare system changed more than 100 years ago. From preventing all kind of diseases, to... keeping as many ill people on a role for as long as they can (not to get them healthy) to suck as much money as they can from the system. So, this is nothing new.

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    • tinabrezpike profile picture(73)

      Yeah… nothing new…but now and then I talk with people from my health group, and it brings back everything, and I get really upset. One girl lost her job because she had a seizure at her workplace. Now she can’t afford her medication…😒she has to take three different pills, and one box costs more than three thousand dollars, plus she needs to pay for the other two also…How can she possibly afford that? Another girl received Stelara, which is for Crohn’s disease, and she also lost her job. Now she has to pay 25 thousand dollars every eight weeks!😡 She can’t manage that, and now her Crohn’s is active again. I mean, it’s just so fucked up. I’m also on Stelara, and I can’t imagine having to pay for it out of pocket. If you have insurance and a job in the US it’s possible to get your medication, but without a job and access to medicare or other assistance, you’re done. 😒😔

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      • worldfinances profile picture(61)

        I mean, as I have heard - In US, even if you have medical insurance, prices are still high for most meds. If you don't have it, than I guess you should think about stealing meds you need or stealing money. I can not really imagine, I would have to live there, because US is a dump for usual Joe and heaven for corporations and banks. I'm not surprised that more and more americans are fleeing into Europe, south-east Asia, south America... because in US you can be working like cattle, and still not make it. People are killing each other because of political view. If wages in USA would keep up with inflation in last 50 years, worker should be paid around $80 per hour (minimal wage). Instead minimal wage in US is $7.5 per hour. So it should be around 11x higher.

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    • hive-174680 profile picture(62)

      We appreciate your work and your publication has been hand selected by the geography curation team on behalf of the Amazing Nature AN Community. Keep up the good work!

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